This is the first of the new posts which will have real titles indicative of their content and not just a date!
After the initial shock and a couple of good cold beers I put on my investigative reporter’s hat and started my quest for information. A real treasure trove it is too!
UCLA Neuro-Oncology are running a comprehensive brain tumour programme and they are the only ones (I know of) who keep and publish extensive data on their patients. Now, according to the doctors at UCLA
Glioblastoma multiforme (GBM) survival rates vary greatly depending on several key-factors, such as initial diagnosis, number of times the tumor has recurred, patient age, molecular diagnostic results, past therapy, Karnofsky Score, tissue features, along with 50-60 other key variables…
High checks for yours truly on a number of these key-factors, including total surgical removal, high Karnofsky Score, youthful age etc.
The corresponding chart shows that the median survival rate for all GBM patients in my age group is 617.18 days. Now this includes everyone, irrespective of whether they have had surgery or not. Notice, how a couple of people are nicely beating the odds by hanging in there for 3,000 days and more!
Plan for the next few weeks is to read up as much a possible (any leads or info you can provide is welcome) and to get a plan in action to keep the bastard in check.
I’m alive and kicking!
PS: have I told you that goats cheese is soul food?
Fine research Tom and a great way to make an informed choice, read all that you can ask a lot of questions.
I sent you an email that might help you be better informed with a mantra that you will never find in the medical literature and is too rarely conveyed to cancer sufferers by their doctors.
I hope it is helpful
Brendan
P.S: You are right about the Goat’s Cheese, I’m out to get some now
Lieber Tom,
habe das mehrfach gelesen – Frage second opinion von UCLA?
Wünsche Dir Stärke und klare Gedanken – lass Dich nicht unter kriegen – denken viel an Dich!
Thomas
4th of july? tybee island, ga?
Hallo Thomas,
ruf mich mal an – morgen wäre ein Seminar bei Jörg Krebber – mit Andrea Sixt – siehe meine Email an Dich – falls Du Lust hast, call me 0043-676-601 8315.
Thomas