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Archive for the ‘Diagnosis’ Category

The monster has grown back significantly during the past two months, now almost totally filling the tumour cavity left by the last operation snd extending into the other half of my poor brain (it always affects the weakest part, doesn’t it ?). I haven’t spoken to my Neurosurgeon yet, but my Oncologist assumed a grave [...]

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Couldn’t be arsed to post for a while now, sorry! I am currently taking extended beauty sleeps (not that it really helps) during my days. This is probably due to the medications. Also, my eyesight is down to 40%, which makes working with a laptop rather difficult. I did get a white stick, however, in [...]

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Well, you know what they say: three experts, three opinions. In this case, this is easy for me to live with, as the general view of my MRI results (bar one) is that no new growth has occured, my neurosurgeon even thinks it’s gone back a bit!
We are besides ourselves with joy!
I am convinced that [...]

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It’s clean!

What a relief, no changes since the last MRI, which means no new growth in the last five weeks since the operation. We’re all very happy. The chemotherapy continues, alas and I’m still very tired.

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Unwelcome visitor

A bit of a disappointment on Tuesday as the MRI did not look as expected but rather like this. The friendly-looking flowery shape is the evil regrowth!
I am most likely going to have another operation but undecided about the where and when. Also, since the therapies so far have been less than effective a radical [...]

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I must have been too upbeat after my radiation ended and now I got the punishment for it. Reducing the Cortisone intake was not such a good idea after all. Started feeling really woozy last week, getting headaches, bumping into things again, and staying in bed for days on end.
Net effect, back to square one, [...]

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Statistical Information

This is the first of the new posts which will have real titles indicative of their content and not just a date!
After the initial shock and a couple of good cold beers I put on my investigative reporter’s hat and started my quest for information. A real treasure trove it is too!
UCLA Neuro-Oncology are running [...]

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Monday, June 9th 2008

This is kind of hard for me!
I originally started this for myself and then let you in on my “dirty little secret”. I guess I didn’t want to go the whole hog alone and was frustrated and scared and whatnot. Your encouragement means the world to me!
So, anyways, the blob has been identified. It’s called [...]

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Feeling somewhat better now. Just back from talking with the head of the neurosurgery clinic. It appears that the operation itself is no big deal, routine so to speak (see below).
Problem is, they don’t really know what it is.
On the positive side, however, the tumour seems to be well-defined and therefore easier to remove. We’ll [...]

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Sorry, couldn’t be arsed to write anything. Also feeling very tired. Trying to cope with the diagnosis (high grade glioma or melanoma-metastasis).
Again, thanks to Wikipedia we have instant access to the wide and wonderful world of gliomas:
A glioma is a type of primary central nervous system (CNS) tumour that arises from glial cells. The most [...]

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