I must have been too upbeat after my radiation ended and now I got the punishment for it. Reducing the Cortisone intake was not such a good idea after all. Started feeling really woozy last week, getting headaches, bumping into things again, and staying in bed for days on end.

Net effect, back to square one, like before the operation. The fact that I cannot have a MRI until the end of October has also depressed me a bit, as these gliobastards can regrow at an astonishing rate.

On the other hand, I’ve thrown so much at it, with the radio- and chemotherapy, the immune-treatment in Cologne, the hyerthermia and the dendritic cell therapy, it seems hard to believe that the tumour has been able to thrive in these conditions.

I’ve changed my blog around a bit, you’ll find the bucket list as a separate page now, and I’ve started to fill in some of the glossary. You may note that I have a section on palliatve care, more on this later, let’s just say that I am more on the side of cure than just care.

Now that I have upped my Cortisone dosage once more I’m feeling much better again and the energy has returned. One “interesting” aspect of larger doses of Cortisone is that your leg muscles get weaker (I look like a potato on sticks), so I will take up an exercise of stair climbing and walking in my neighbourhood.

With the new energy, the depression has also disappeared which is a good thing!

Next week I’m off to Cologne for another round of getting my immune system up and running again, this has obviously suffered from the radiation and the chemo.

Cheerio,
Tom

No news from the hospital, thus no real post!

Waiting makes me increasingly nervous; know I shouldn’t be but can’t help it. The “WHY ME” question keeps raising its ugly head in my mind. Of course, there is no answer to it and no cure, except for maybe a course of the faboulous FUKITOL (r)

Need to do something with my days, so I called up my solicitor to draft my will. Do I really have to deal with this crap now!

Milena’s not feeling too well either, I’m not a great help, of course.