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Shangri-La

The few days at the fabulous Shangri-La Resort in Muscat were really quite something. We were well and truly spoilt and had a very relaxing time. I was a bit tired mostly, so we didn’t do too much other than lounge by the pool or the beach, but hey – it was a holiday.

Oman is a beautiful country and the locals are really very friendly and open. We would definitely go again!

I’m still quite tired these days, sleeping 14 to 16 hours, but at least I can sleep.

The big day is tomorrow, first MRI after the combined radio- and chemotherapy. Depending on the results, it’ll be business as usual or a radically altered approach to the therapy. Anyways, more details in the next few days, keep your fingers crossed, my friends.

Cheerio,
Tom

Chemotherapy 2.0

My trip to Cologne behind me, I’ve now started on an extended course of chemotherapy (5 days of temozolomide, 3 weeks off). The higher dosage of 400 mg really gets to me and I’m currently sleeping a lot and feeling a bit sick. Thank God it’s over today and I can hopefully recover before we leave for our holidays on Friday. I’m really looking forward to the hot weather and the beaches in Oman!

What goes up must come down

I must have been too upbeat after my radiation ended and now I got the punishment for it. Reducing the Cortisone intake was not such a good idea after all. Started feeling really woozy last week, getting headaches, bumping into things again, and staying in bed for days on end.

Net effect, back to square one, like before the operation. The fact that I cannot have a MRI until the end of October has also depressed me a bit, as these gliobastards can regrow at an astonishing rate.

On the other hand, I’ve thrown so much at it, with the radio- and chemotherapy, the immune-treatment in Cologne, the hyerthermia and the dendritic cell therapy, it seems hard to believe that the tumour has been able to thrive in these conditions.

I’ve changed my blog around a bit, you’ll find the bucket list as a separate page now, and I’ve started to fill in some of the glossary. You may note that I have a section on palliatve care, more on this later, let’s just say that I am more on the side of cure than just care.

Now that I have upped my Cortisone dosage once more I’m feeling much better again and the energy has returned. One “interesting” aspect of larger doses of Cortisone is that your leg muscles get weaker (I look like a potato on sticks), so I will take up an exercise of stair climbing and walking in my neighbourhood.

With the new energy, the depression has also disappeared which is a good thing!

Next week I’m off to Cologne for another round of getting my immune system up and running again, this has obviously suffered from the radiation and the chemo.

Cheerio,
Tom

Texas Chili for a Streetparty

For our traditional streetparty I cooked up a chili again, which was sold out much to soon; must make more next year!

Texas Chili

5 kg of beef (breast or neck, not too lean) cut into 2 cm chunks
6 large onions, chopped
6 stalks celery, chopped
4 large green peppers, chopped
4 large sweet red peppers, chopped
4 jalapeño peppers, deseeded and chopped
8 cloves garlic, ground
6 tbsp extra virgin olive oil
8 tbsp cocoa powder (with no sugar)
6 tbsp chili powder
1 tbsp freshly ground cumin
1 tbsp hot paprika
50 g of fresh oregano, stalks discarded and finely chopped
6 tbsp molasses
1/2 bottle of dry red wine
4 400 g cans diced tomatoes, undrained
3 400 g cans chick peas, drained
sea salt and freshly ground black pepper

800 g sour cream
600 g shredded cheddar cheese

Put the meat and the next seven ingredients into one or several large pots. Cook over medium heat, stirring constantly, until meat browns. Drain and return to pot.

Stir in cocoa powder and rest of the ingredients. Bring to a boil, cover, and reduce heat. Simmer for 2 hours, stirring occasionally.

You can serve this right away with the sour cream and the shredded cheese, however, I find it improves if you prepare it a day ahead and reheat it the next day.

Serves 30 to 35 people.

Oh, and don’t forget the beer!

Radio Days Are Over

Had my last day of radiotherapy yesterday! I am so happy, as I tolerated the treatment less and less over time. The doctors also upped the dosage for the last week, so you can understand my relief that I’m finally done with it.

It will take a couple of weeks to get me back to normal but other than some low dosage cortisone and antibiotics I’m off drugs for now. Chemotherapy will start in about 6 weeks, in the meantime I’ll have another treatment to replenish my autoimmune system in Cologne.

Hey, things are definitely looking up, my hair should grow back, too bad summer’s almost over!

Cheerio,
Tom

Slowhand in Zurich

Thanks to my friend Julie who managed to get tickets, we went to the Eric Clapton Concert in Zurich on August 20th. This must have been one of the best!

Clapton and band started out with a couple of soulful songs, of which “Here but I’m Gone” was the most stunning performance in my humble opinion. I also really liked the acoustic set in the middle of the show; a guitar lesson by a guitar god. Clapton was in an excellent mood, smiling at the audience throughout and his fingerwork was just plain incredible. The concert ended on some of the classics like “Wonderful Tonight”, “Layla”, and “Cocaine”. With the encore, it was a good two hours of some of the finest music.

The other star of the evening for me was the incredible Chris Stainton on the keyboard. These guys are both well north of 60, simply amazing!

A Moroccan Dinner

When I started this blog I wanted to share my experiences about food and drink as well. So here’s what I cooked up for dinner the other evening and very nice it was too:

Lamb Tagine with Aubergines

1 kg of lamb (leg or neck) cut into 2 cm chunks
1 large onion, thinly sliced
40 g of fresh flat-leaf parsley, stalks discarded and finely chopped
4 tbsp extra virgin olive oil
1 tsp ground ginger (I use a garlic press for this)
1 cinnamon stick
pinch of saffron filaments
sea salt and freshly ground black pepper
2 aubergines (about 300 g each) cut into 2 cm chunks

Put the lamb and the next six ingredients into a large pot. Add a little sea salt and some pepper. Cover with water (about 1 litre) and bring to the boil. Cover and let simmer.

Meanwhile, sprinkle the aubergines with salt and let them sweat for about 30 minutes, then rinse them with cold water and pat dry.

Add the aubergines to the meat and cook until they are very soft (about 20 minutes). If the sauce is too runny, increase the heat and reduce by boiling it uncovered.

Transfer to serving dish as is or mush the aubergines into the sauce first (I find this much more satisfying as it makes for a thicker sauce), but either way is very yummy.

Couscous à la mode de Tom

1 tbsp tomato concentrate
1 tsp harissa
1 tbsp ras al-hanout (Moroccan spice mix)
1 medium onion, finely chopped
3 tbsp extra virgin olive oil
3 large red peppers, diced
1 can (410 g) of chickpeas, drained
500 g pre-cooked couscous
1.2 litres of boiling water
1 handful of sultanas
20 g of fresh coriander, stalks discarded and finely chopped
juice of 1/2 small lemon
sea salt and freshly ground black pepper

In a large pan, heat up the tomato concentrate with the harissa and the ras al-hanout, stirring constantly until the spices release their lovely aromas. Add the olive oil, the onions and the red peppers. Cook until soft, adding some of the boiling water if needed.

Add the rest of the ingredients, take off the heat and let the couscous absorb the water for about 10 to 15 minutes. Turn over with a wooden spoon and season to taste.

If you want to add a salad along the Moroccan theme, throw together some diced tomatoes, 1 diced and peeled cucumber, 2 chopped onions, some extra virgin olive oil and the juice of 1 to 2 lemons. Season with some ground cumin, chopped flat-leaf parsley, black pepper and sea salt.

This serves four hungry people with a nice bottle (or two) of Cabernet Sauvignon. Bon appétit!

Weekend in St. Moritz

With the girls away in Spain and Crete, we went up to St. Moritz for a long weekend. Beautiful weather, great food, but bad idea. Yours truly wanted to go hiking, so on Friday we took a cable car up to 2′300 metres and started a short, but challenging hike which would have brought us up to about 2′700 metres (Chamanna Segantini). This is the mountain hut where the famous Swiss painter Giovanni Segantini retired in September 1899, to complete his triptych for the forthcoming world fair in Paris. On 28 September 1899 the artist died unexpectedly. His beautiful triptych of the alps can be seen in the Segantini museum in St. Moritz.

Well, I never even got there. Had to turn back after about two-thirds of the hike as I was getting woozier and woozier. Didn’t get much better in St. Moritz, I believe the altitude is probably not too good for me yet. Heck, who’d have thought I was still sick!

Back in Zurich now, everything’s normal again. This weekend I’ll do some Reiki – more about that later.

Cheerio,
Tom

In memoriam: Randy Pausch

After a valiant battle with pancreatic cancer, well known computer science professor Randy Pausch passed away on July 25th, 2008. His “last lecture” is a real inspiration, I highly recommend viewing it.

To find out more, you can also check out Randy’s tribute page at Carnegie Mellon University.

The Bucket List

I saw this great movie last week, starring Jack Nicholson and Morgan Freeman. Apparently some people got upset at the light-hearted way this story deals with cancer. Hey, get off it, it’s only the movies!

I really did enjoy it and it made me laugh out loud more than a few times. Here’s the original bucket list from the movie, as written down by Carter Chambers, Morgan Freeman’s character:

  1. Witness something truly majestic
  2. Help a complete stranger for a common good
  3. Laugh till I cry
  4. Drive a Shelby Mustang
  5. Kiss the most beautiful girl in the world
  6. Get a tattoo
  7. Skydiving
  8. See the pyramids
  9. Get back in touch (previously “Hunt the big cat”)
  10. See Rome

Not too bad, though I might skip on the tattoo and the Mustang. Here’s my own:

  1. Witness something truly majestic check
  2. Help a complete stranger for a common good
  3. Laugh till I cry
  4. Drive a 1930’s Bentley
  5. Marry the most beautiful girl in the world check
  6. Fly over the African savanna in a small plane
  7. Dive in the Great Blue Hole in Belize
  8. See the Taj Mahal and the palaces of Rajastan
  9. Get back in touch
  10. See Vietnam

Obviously, I’m missing a few, but I’m open to suggestions! Number two might just be a tough one.

Oh, the check on number one: the births of my beautiful daughters Laura and Stella!

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